Yeah, it worked really well actually. It seems that their seizures are related to sugar metabolism in the brain and switching to a fasted state enabled the production and use of ketones instead of glucose. That leas to a reduction from seizures as much as twice an hour to one or less per day most of the time. Now we (solidarity and other benefits) eat a really simple diet of mostly simple cuts of meat cooked to medium-rare as well as chicken wings and butter. The butter maybe an issue though, so we are testing removing that too after the next long fast to see if we get better results.
So down from ~30 seizures per day to maybe 1 seems like a fairly good fix and we just treat it like an allergy. No carbs, no fibre, no sugar alcohols, no artificial sweeteners, and soon maybe no butter either. Better thab seizures, good for overall health so far, and fairly sustainable. I may miss cheesecake but not as much as I don’t miss my partner having seizures all day.
On a keto based diet, you’ll need those fats. Perhaps consider something like sunflower oil instead though? Nuts also come with plenty of fats and have a lot of fiber too. Some have carbs more than others, so you’d have to check which ones fit your specific diet, but these are a great source of healthy fats and help keeping the gut biomes working well.
Edit: just to add, you could experiment with the fiber more. Long carbs have a very different effect on the body vs. short ones, so those, in moderation to keep the keto state up, could be okay for the partner too, and perhaps give more robustness/variety to the diet?
Yeah, we need fats for sure. Our thinking at this point is to aim for saturated fats as much as possible, less than 5% polyunsaturated and less than 30% mono. That said, pork belly has a tonne of fat but a surprisingly large amount of mono. Also, it is delicious.
The nuts and seeds are just not something we are doing at the moment. We will experiment with introducing small amounts of interest foods but I think seeds are largely out because of the various chemicals in the casing. Some beans may be OK after sprouting them because that takes the acid from the skin and recycles it into energy for the growing plant, but there is no similar disarming strategy for most seeds.
As for fibre, adding fibre led to a fairly serious gut issue, think blood and pain. For now fibre is banned, not allowed in the food club. Given some time it may be tested again, but the last time showed me unspeakable horrors.
I think the diet is currently robust enough for the next year. After that other things may be viable, but most likely it will be very small amounts and infrequently. If we do try fibre again it will probably be home ferments like pickles because the bacteria which break down the fibre are there in the food, so even if there is a problem with my partner digesting the fibre the bacteria there can help.
I’ve done 7 days on a fast, water only. My partner and I were testing if their seizures would stop without food and they did.
Well no shit. That’s fascinating. So now where are you at with the problem?
Yeah, it worked really well actually. It seems that their seizures are related to sugar metabolism in the brain and switching to a fasted state enabled the production and use of ketones instead of glucose. That leas to a reduction from seizures as much as twice an hour to one or less per day most of the time. Now we (solidarity and other benefits) eat a really simple diet of mostly simple cuts of meat cooked to medium-rare as well as chicken wings and butter. The butter maybe an issue though, so we are testing removing that too after the next long fast to see if we get better results.
So down from ~30 seizures per day to maybe 1 seems like a fairly good fix and we just treat it like an allergy. No carbs, no fibre, no sugar alcohols, no artificial sweeteners, and soon maybe no butter either. Better thab seizures, good for overall health so far, and fairly sustainable. I may miss cheesecake but not as much as I don’t miss my partner having seizures all day.
On a keto based diet, you’ll need those fats. Perhaps consider something like sunflower oil instead though? Nuts also come with plenty of fats and have a lot of fiber too. Some have carbs more than others, so you’d have to check which ones fit your specific diet, but these are a great source of healthy fats and help keeping the gut biomes working well.
Edit: just to add, you could experiment with the fiber more. Long carbs have a very different effect on the body vs. short ones, so those, in moderation to keep the keto state up, could be okay for the partner too, and perhaps give more robustness/variety to the diet?
Yeah, we need fats for sure. Our thinking at this point is to aim for saturated fats as much as possible, less than 5% polyunsaturated and less than 30% mono. That said, pork belly has a tonne of fat but a surprisingly large amount of mono. Also, it is delicious.
The nuts and seeds are just not something we are doing at the moment. We will experiment with introducing small amounts of interest foods but I think seeds are largely out because of the various chemicals in the casing. Some beans may be OK after sprouting them because that takes the acid from the skin and recycles it into energy for the growing plant, but there is no similar disarming strategy for most seeds.
As for fibre, adding fibre led to a fairly serious gut issue, think blood and pain. For now fibre is banned, not allowed in the food club. Given some time it may be tested again, but the last time showed me unspeakable horrors.
I think the diet is currently robust enough for the next year. After that other things may be viable, but most likely it will be very small amounts and infrequently. If we do try fibre again it will probably be home ferments like pickles because the bacteria which break down the fibre are there in the food, so even if there is a problem with my partner digesting the fibre the bacteria there can help.